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Wednesday, May 4, 2016

Celiac Awareness Month

May is Celiac Awareness Month and I have made it my goal to post about this disease on my blog at least once a week this month in honor of my daughter, Meredith.

Meredith was diagnosed two years ago and we never would have imagined the struggle we would have with the huge changes we had to make with her diet. Thankfully, the availability of gluten free foods have come a long way in the last two years, so it has become easier.

This week, I would like to share some facts about the disease.

Did you know?
-1 in 133 people in the United States have Celiac Disease. (approximately 3 million people)
-Celiac Disease is a serious, genetic autoimmune disease.
-83% of the people with the disease are undiagnosed.
-Left undiagnosed and untreated, people with Celiac Disease are at risk for other serious health consequences, such as osteoporosis, anemia, thyroid disease and even certain cancers.
-Celiac disease is the only autoimmune disease with a known trigger- gluten. Gluten is the protein found in wheat, rye, and barley foods and foods and drinks that contain these grains.
-Currently, the only treatment for Celiac Disease is a strict gluten-free diet.

Signs and Symptoms:
* Anemia                                                 
* Anxiety                                                 
* Bloating or gas                                     
* Constipation                                         
* Delayed growth in children                  
* Depression                                              
* Diarrhea
* Discolored teeth
* Fatigue/tiredness
* Headaches or migraines
* Infertility
* Irritability
* Itchy skin rash
* Joint pain
* Pale mouth sores
* Poor weight gain
* Thin bones
* Tingling/numbness

While these are some of the common symptoms reported, many individuals with Celiac disease will not have any symptoms at all.

Ingesting small amounts of gluten, like crumbs from a cutting board or toaster, can cause damage to the small intestines.

Celiac disease is diagnosed by completing a screening process. There are blood tests that can screen for celiac disease. If your blood test is positive, a biopsy of the small intestine should be performed to confirm the diagnosis. Once the disease is confirmed, the only treatment is a strict gluten-free diet. It is important to note that you should not self-diagnose as it is very important that you are NOT on a gluten free diet for the screening. If someone has already begun a gluten free diet, their tests will not be accurate.

It is important to be screened, because this is a lifelong disorder that will affect multiple parts of the body and can potentially lead to other serious illnesses. Anyone over the age of 3, experiencing symptoms, first-degree relatives of individuals with celiac disease (siblings, parents, children) and anyone with a related autoimmune disorder should get screened.

PLEASE NOTE:  I am in no way an expert, but wish to share as much as possible about this disease in an effort to raise awareness and better understanding for those who suffer with this disease. Please be sure to consult your physician if you believe you may have Celiac disease for a proper diagnosis.
To find more information about Celiac Disease, go to:  www.celiac.org  or  www.beyondceliac.org





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